What Alzheimer’s feels like?

Alzheimer’s is a progressive brain disease that results in distressing symptoms. Experts believe that the disease is caused by the buildup of proteins in the brain that disrupt communication between brain cells and cut off nutrients and other processes cells need to remain healthy and functional. Over time this results in cell death in the brain and atrophy or shrinking of the brain itself.

Alzheimer’s disease is responsible for most dementia diagnoses, and symptoms are often associated with dementia, although dementia itself isn’t a condition but rather a collection of symptoms. Because the condition is progressive, initially, symptoms may be mild, and as the disease advances, the symptoms become more severe. The rate of progression varies from person to person.

In the early stage of Alzheimer’s, patients function independently and in most of the normal ways they always have. Still, they and those closest to them may begin to notice symptoms like coming up with the right words, trouble remembering newly learned information, losing things, being unable to retrace steps to find them, trouble planning and organizing, and difficulty with new names.

In the middle stage, the need for care increases. This stage can last for years and is often a point in which the patient feels withdrawn, isolates, or experiences mood swings due to frustration and confusion about their condition and situations they may be in. Time and place may be confused more frequently, and they may have difficulty choosing clothes appropriate for the season. The tendency to wander or become lost may develop, and personality and behavioral changes often occur.

In its latest stage, Alzheimer’s becomes it's most severe. It is difficult for patients to communicate or engage with their environments, and the ability to control fine motor movement and larger motor movements like speaking and walking may diminish. This can be a frightening experience for the person, as they are increasingly confused and unable to understand their condition, those around them, and their environments.

Alzheimer’s can be a heartbreaking condition for both the patient and their loved ones, which is why support for caregivers and family members can be vital. Counseling that addresses caregiver stress and compassion fatigue can be very helpful. If you have questions about the condition, contact the Alzheimer’s Helpline at 1-800-272-3900 or visit your trusted medical provider.