Early-Onset Alzheimer’s Disease: Mental Health Challenges And Support

When individuals are diagnosed with a mental health condition, degenerative disease, or chronic illness at a young age, it can be particularly challenging. Health conditions can disrupt a person’s professional, familial, and social life. While uncommon, individuals in their 30s, 40s, and 50s can develop conditions like early-onset Alzheimer’s disease. This article explores early-onset Alzheimer’s disease symptoms, challenges for younger adults after a diagnosis, and ways to manage symptoms and seek support. 

What is early-onset Alzheimer's disease?

When an individual under the age of 65 is diagnosed with Alzheimer’s disease – a degenerative brain disease that affects memory and cognition – it is typically known as early-onset Alzheimer's disease. Also called “younger-onset Alzheimer’s disease,” people in their 40s and 50s—and, in rare cases, 30s—can be impacted. While it is less common than late-onset Alzheimer’s disease, individuals may face unique challenges after an early-onset diagnosis.

Early-onset Alzheimer’s disease vs. late-onset Alzheimer's disease

Early forms also tend to be more likely to be caused by a family history of Alzheimer’s disease. Familial Alzheimer’s disease can be related to specific genetic mutations, including those in the amyloid precursor protein.

Memory loss and mental health symptoms of Alzheimer’s disease

In the early stages of Alzheimer's disease, individuals may experience subtle cognitive changes, such as memory loss, difficulty with decision-making, and problems with emotional regulation. For most cases of Alzheimer’s disease, trouble with episodic short-term memory is a common early symptom, which can make it difficult to remember recent conversations, names, and events.

How memory loss and mental health symptoms differ in early-onset Alzheimer’s

While episodic short-term memory loss can be the initial symptom for individuals with early-onset Alzheimer’s, research suggests that some people initially experience non-memory-related cognitive symptoms. Visuospatial skills or executive functions may be impacted. For example, someone may begin getting lost in familiar places or bumping into people and objects.

Diagnostic challenges with early-onset Alzheimer's

Diagnosing young-onset dementia can be difficult, especially since younger individuals may not be on the lookout for symptoms of cognitive decline. The early-onset form of Alzheimer’s is often diagnosed when individuals decide to seek professional help due to another concern, such as burnout or mental illness. To perform an accurate diagnosis of early-onset Alzheimer’s disease, genetic testing, brain imaging, and other comprehensive evaluations are often needed. Younger individuals may be reluctant to undergo invasive and expensive tests, especially if their health insurance coverage is limited.

Challenges in everyday life after a diagnosis

Due to various symptoms, individuals with early-onset dementia may find everyday activities more challenging. Managing finances, commuting to and from work, raising children, and planning finances are some activities that may become more difficult. In some cases, people may even face dementia stigma, leading to job loss or societal challenges. Support groups can be helpful for those who are facing personal and societal challenges.

Managing Alzheimer’s symptoms through eating habits, routine, and lifestyle

In addition to seeking support from family members, caregivers, and peers, simple lifestyle changes may slow the progression of Alzheimer’s. They may also enhance cognitive function, relationships, and well-being.

Lifestyle changes to promote health and well-being

Below are a few lifestyle changes to consider if you are living with early-onset Alzheimer’s disease.

• Following a consistent daily routine, including consistent mealtimes and sleep schedules, to reduce agitation and confusion
• Eating balanced, nutrient-rich meals that include leafy green vegetables, berries and other fruits, whole grains, nuts, beans, and fish
• Participating in stimulating activities, such as gardening, walking, completing puzzles, and playing games, to improve mood and slow disease progression
• Engaging in physical activities, such as tai chi, walking, or swimming, to potentially slow Alzheimer’s disease progression

Support groups for younger adults with early-onset Alzheimer’s

After a diagnosis, even if family members and loved ones are present to offer mental and emotional support, connecting with support groups can be beneficial. Support groups intended for those with young-onset dementia can be an opportunity for individuals with similar challenges to come together. Sharing experiences with others who understand can be therapeutic and validating. Support groups can also empower people with early-onset Alzheimer’s to build a community and support one another. 

Support groups for caregivers

It can also be beneficial for caregivers to prioritize self-care while caring for individuals with early-onset dementia or Alzheimer’s disease. Support groups provide a non-judgmental space for caregivers to share experiences, connect with others facing similar challenges, and learn self-care skills. The Alzheimer's Association provides spaces for caregivers to connect with one another in person and online.

The future of Alzheimer’s disease treatments

While there is currently no cure for Alzheimer’s disease, research is continuing to explore ways to slow disease progression, detect early-onset Alzheimer’s, and treat symptoms effectively. For example, in the future, blood tests may be used to identify a risk factor for early-onset Alzheimer’s disease.

The role of clinical trials for early detection

Often, individuals with early-onset Alzheimer’s disease can participate in clinical trials and current research. This participation can help researchers better understand how the disease progresses in younger adults, which may, in turn, lead to promising new treatments.  

Online therapy for Alzheimer’s disease and dementia

For individuals with early-onset Alzheimer’s disease, their loved ones, and their caregivers, online therapy can be a convenient way to practice self-care. Platforms like BetterHelp connect individuals with compassionate licensed therapists who are specialized in providing care for a variety of mental health challenges. Online therapy can be flexible, convenient, and affordable, reducing the stress associated with seeking professional support. 

Research on the efficacy of online therapy for dementia patients 

Online therapists can help people connect with support groups, engage in stimulating activities, form healthy routines, and practice lifestyle changes that may slow disease progression. As symptoms progress, compassionate mental healthcare professionals can offer consistent guidance and support. Research suggests that remote interventions for dementia provided by a mental health professional can serve as a viable and beneficial alternative to in-person therapy.